
On behalf of Vivien or any other child you may know burdened with congenital heart defects, please consider taking the time to send a letter to your senators and representatives asking them to back this. You can use the template below. There are instructions on how to find your senators and representatives. On the part that says to insert why you care, only put a few sentences about what you have observed knowing a child with congenital heart defects or knowing the struggles the parent of a CHD kid goes through. This really would mean the world to us and every family touched by congenital heart defects.
When you go to your senator/reps' websites, you can copy and paste the whole letter into the little box they provide. They don't allow attachments. Just select something like "health" or "health care" from their drop down menu.
Thanks,
Beth
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On March 17th, the Congenital Heart Futures Act (Bill S. 621 in the Senate and HR 1570 in the House) was introduced to Congress! In the Senate, Senator Dick Durbin of Illinois led the charge joined by Senator Thad Cochran of Mississippi. In the House, the bill's lead co-sponsors were Representative Zach Space of Ohio and Representative Gus Bilirakis of Florida. We are thrilled that this groundbreaking piece of legislation has already received bipartisan support.
So what's next? Like any piece of legislation, the Congenital Heart Futures Act has to get majority support in both the House and Senate in order to be passed. Please email your Senators and Congressman today to ask them to become a co-sponsor of this legislation. It just takes a minute - here's how you do it:
1.
Go to http://www.senate.gov and http://www.house.gov to look up
your representatives and their email address.
2.
Draft your email - Here is a template to get you started.
Dear
[Lawmaker name here]I am writing to ask for your help in making a brighter future for
all those born with heart defects. Yesterday the Congenital Heart
Futures Act, legislation calling for research, surveillance, and
education in congenital heart disease, was introduced in the
Senate by Senators Durbin and Cochran and in the House by
Representatives Bilirakis and Space. I am writing to ask you to
co-sponsor these bills (S. 621 and H.R. 1570) and help all those
born with heart defects live longer, healthier lives.
Congenital heart disease is this country’s number one birth defect
and kills twice as many children as childhood cancer. Although
many children now undergo successful heart repair, most will
require special life-long care and face high risks of developing
additional heart problems. But up until now there has been
virtually no federal investment to address the research and
education needs of the 1.8 million Americans now living with
congenital heart disease.
[Insert 2-3 sentences saying why you care]To sign on as a co-sponsor of the bill, House Members should
contact Dan Farmer with Rep. Space at (202) 225-6265 to discuss
support of H.R. 1570. Senators should contact Sara Singleton with
Senator Durbin at (202) 224-2152 re: S. 621.
Thank you in advance for your help in securing a future for all
those living with congenital heart disease.
Sincerely,
[name]
[full mailing address]
[email]3.
Make your letter personal to you. The template has a place to add
two or three sentences (more is NOT better in this case!) about
why this legislation matters to you personally, and offers some
samples to help get you started.
4.
Send your email. Be sure to include your full mailing address as
well as your email address. Don't use US mail, since thanks to the
anthrax scare it now takes many weeks for mail to arrive in Congress.